“My grace is sufficient for you, for my power is made perfect in weakness.”

Meal in a cup

Dad has lost a ridiculous amount of weight. Many foods make him choke, and nothing tastes right to him anymore. I try not to take it personally when I carefully cook a delicious meal and he pushes it away. I know it’s not me, and I know he’s not wanting to hurt my feelings.

We are now supplementing with regular milkshakes. I bought ScandiShakes, which are a 600-calorie base for a milkshake. I use one packet and blend it with any number of items to try to make something that he will drink, and I’ve gotten pretty creative to keep him from getting burned out on any one flavor. Here are some ideas:

One ScandiShake packet, either chocolate, strawberry or vanilla.

8oz of whole milk, sometimes I add cream too.

Plus any of the following:

Raspberry jam with real fruit, frozen strawberries, frozen blueberries, frozen peaches, frozen banana, orange juice concentrate, cranberry juice concentrate, lemonade concentrate, ice cream of various flavors, raspberry syrup, chocolate syrup, peanut butter, anything you can think of.

Dying and living, daily

My tears too began to fall as I put my arm around my dad’s shaking, shrunken shoulders.

“I just… I just….” he wept, his gray head hanging. Occasionally he looked up and out the window to the bright inviting day outside. The tall summer grass was laying over in the breeze, the flowers on the porch alternately dimmed and illuminated by the patchy clouds moving swiftly in and out of the path of the sun’s rays.

With effort, he pulled his shoulders up to draw a ragged breath. “I just feel so restless, to be outside,” he said, pausing to pull in more air between phrases. “I hate sitting here, lying here, dying.”

For a man who arguably spent two-thirds of his life, and certainly his best hours, out of doors, the greatest theft ALS has wrought to date is that of his freedom to be working outside on our farm. So much of his day is now spent resting in bed, or forever anticipating a bowel movement, or waiting for my availability to convey him to the porch to enjoy what nature he can from the porch.

And I, as always, am torn. I hug my dad tight, kissing the protruding vertebrae at the top of his bony back, but I hear angry squeals from the other end of the house, and the thunder of several pairs of preschool feet tearing toward me for justice. Sure enough, the door to my dad’s room bursts open and their pleas and accusations pour forth as they pile through the door. I order them out, and my dad pats my leg and gestures after them, releasing me to tend to their needs. I give him a lingering look as I head for the door. His face is still wet. I want to stay and give in to the sorrow, to walk with him through this loss. But my four kids, his grandchildren, call me away. So I return to them, to living and growing and learning and squabbling and playing, while my dad curls up on his bed again, staring out the window.

My mantra

I am in such a strange phase of my life. A paradoxical juxtaposition, I would label it “Hospice Preschool.” My days are filled with appeasing picky appetites, wiping bottoms, cleaning spills, and dressing bodies. On the one hand, I am training and teaching my children and I look ahead to their futures many years hence, and on the other hand I am hyperfocused on making this very present moment as comfortable as possible for my dad, whose todays are indefinitely numbered. Within my bosom I feel the tension, the taut tug of wanting to spend my time waiting on my dad’s every whim, and still needing to break up squabbles, kiss boo-boos, read stories and brush hair. Life and death are brothers in this world, daily active as they live side-by-side in my home. Four little ones on the upswing, a gray one on the return, and two suspended at the zenith, the gears of their frenetically-spinning hamster wheels powering the lives of the other five.

The daily soundtrack to my much-interrupted inner monologue is this praise and worship song, whose words remind that life and death are both in God’s palm.

Blessed Be Your Name
In the land that is plentiful
Where Your streams of abundance flow
Blessed be Your name

Blessed Be Your name
When I'm found in the desert place
Though I walk through the wilderness
Blessed Be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

Blessed be Your name
When the sun's shining down on me
When the world's 'all as it should be'
Blessed be Your name

Blessed be Your name
On the road marked with suffering
Though there's pain in the offering
Blessed be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

You give and take away
You give and take away
My heart will choose to say
Lord, blessed be Your name

Ciabatta sandwich buns

What fun! I decided to try the ciabatta recipe to make buns for sandwiches, and they came out delightful! They’re similar to Schlotsky’s and about the same size, I plan to use these for BLT’s for dinner tonight.

ditrciabattabuns.jpg

This time I baked them on cookie sheets instead of a pizza stone, and this resulted in greater ovenspring*. It is very difficult to get a consistent shape, and more often than not I ended up deflating them almost completely in cutting the dough into the individual servings. At 500°F they baked for a scant 10 minutes, but turned out terrific! Unfortunately, I also learned that if you get any excess cornmeal or flour on the pan, it will burn and fill your entire house with smoke, causing your children to flee to the nearest open window, gasping for air. But it won’t harm the buns!

ciabattabunsliced.jpg

Good thing, too!

 (You’ll just have to imagine that bun full to bursting with thick bacon, crisp lettuce, fresh tomatoes and slathered with mayo. I can’t take a picture of them anymore, because we ate them all!)

* When the loaf is first placed in a well-preheated and hot oven, the heat from it causes a final burst of fermentation and expansion called “oven spring”. This gives the bread a nice rounded and well-risen top. Oven spring continues through the first five to ten minutes of baking and stops when the loaf has reached 140 degrees F when the yeast dies. The flour’s starches gelatinize and the gluten sets, making the loaf’s shape permanent.

Jenna’s blanket

Haven’t decided if I’m really going to keep this blog up much, but since most of my hits are about crocheting, I thought I’d really like to share this with everyone to inspire others. :)

This blanket was done for a friend’s baby whose gender was unknown until her birth. I had decided to do the Afghan of the Sandman again, in white this time so that it would be gender-neutral (I did it in blue before). When Jenna was born and I got the call, I bought some red ribbon to girl-ify her blanket.

blanketjennalyse1.jpg

I had originally planned to just thread the ribbon through the border, but I’d tried that before with Bug’s blanket and found it to be a choking hazard. So after a bit of trial-and-error, I found an alternative that just thrills me! I slip-stiched the ribbon around the posts of a single crochet row in the border. It is gorgeous, and totally secure with no way to be pulled loose.

blanketjennalyse5.jpgblanketjennalyse4.jpg

Very few people leave their baby’s gender a surprise till birth anymore, but for those that do, I think this will become my standby plan: create a blanket in a neutral color and then embellish with ribbon if the baby turns out to be a girl!

This was crocheted with Bernat Softee Baby white sport yarn, size H crochet hook.

One less thing

“And so then I got a call from him saying we don’t have to worry about money no more and I said, ‘That’s good. One less thing.’” –Forrest Gump, upon learning he was wealthy

Sometimes money seems like such a stupid thing to pray for. Money doesn’t fix broken relationships (like mine with my mom) or heal awful terminal diseases (like ALS) or make any of us truly happy. But it sure can simplify the logistics of difficult circumstances, by paying for lots of expensive equipment to make living with ALS easier, for instance. As long as your hope isn’t in money and your motives are pure, well, I can’t say I have a problem with praying for money.

Especially when that prayer is answered so succintly, so beautifully, and so wonderfully like it was today. Dad’s long-term disability income was approved.

Woo-hoo and praise God!!

In good company

I had a startling realization last night. One of those things that you know academically, but suddenly glows with current pertinence.

Paul’s medium for ministry was writing, too.

He wrote letters to the churches and to fellow Christians. And he struggled with making himself understood, hence his going on and on about “And I don’t mean to say that such and so, and this doesn’t mean that when X happens, Y doesn’t apply, and though some may say I mean thus don’t listen to them because I don’t.” And yes, that seems tedious and interrupts the flow of the writing and reduces the quality of the eloquence, but at the end of the day what matters is making the point truly and wholly understood. Because this isn’t an essay contest to win a prize, this is a ministry where souls are at stake.

So Paul and I both struggle with making a point well-understood, as does anyone writing letters or sermons or blogs. I think Paul would have been a blogger had the medium been available. :)

My response to Kathy Griffin

I just received a fwd about the Christian ire raised by Kathy Griffin’s remarks at the Emmy awards. Besides my intense irritation at receiving an email that says, “If you delete this, nothing bad will happen to you, but if you pass this on, you will truly have stood up for Jesus Christ,” I crafted my own response to this forward and am planning to send it to everyone that received it. I think it needs to be said. I’m just trying to decide if I’m brave enough.

Here’s the original email:

I don’t really watch the comedian Kathy Griffin, but I must say I am appalled that anyone could be this bold in making such a public statement about Jesus. We are truly living in a modern day Babylon.

At the Emmy awards, Kathy Griffin’s acceptance speech said, “A lot of people come up here and thank Jesus for this award. I want you to know that no one had less to do with this award than Jesus.” She went on to say,”Suck it, Jesus. This is my God now!” referring to the Emmy.

As a Christian, I am offended by her hate speech. What do you think might have happened if she had made the hate speech against Muhammed???? Kathy Griffin has the right as an American to say what she thinks. As a Christian-American, so do I.

Today I will refuse to watch any show that she may be on or purchase tickets to any event at which she would perform. What will you do? If you delete this, nothing bad will happen to you, but if you pass this on, you will truly have stood up for Jesus Christ.

And here’s my response:

This woman doesn’t make me angry. We are not necessarily living in a modern Babylon. This is the normal reaction of the unsaved when confronted with the cross. Jesus is foolishness to the world, remember? He is offensive to the unsaved (1 Pet 2:8). How else do you expect them to respond to him? Kathy Griffin has no relationship with Jesus, so do you think he is offended by her words? Hardly. The unsaved have been thumbing their noses and shaking their fists at God for thousands of years, and will continue to do so until he comes back to end it.

I am not appalled that anyone could be this bold in making such a public statement about her opinion of Jesus, I am more appalled that more Christians are NOT making such bold public statements about THEIR opinion of Jesus. We Christians getting our feathers ruffled because we are “offended” by this is such a pompous, American attitude. Where in the Bible does it say we have the right to not be offended? Rather the opposite, we are guaranteed trouble in this world by living our lives for Christ. It is the American who thinks he has the inalienable right to live life without being offended, that’s what puts the gold trim on the BMWs of so many lawyers.

And really, why is this so offensive? Most folks live their lives that way, she just said it aloud. She’s not even guilty of hypocrisy, because she was honest and her actions are consistent with her words.

I find Griffin’s words challenging. She, a non-Christian, openly acknowledges to her audience that she does not submit to Jesus as God, and tells us exactly what god guides her actions. We too have an audience that is paying attention to our behavior, and our behavior tells them exactly what god guides our actions. Whom would your audience identify as your god? Fame? Money? Stuff? Approval? Affluence? Comfort? Personal happiness? Anytime we ditch the teachings of Jesus and the instruction of the Bible to pursue these, we are showing our audience what god truly directs our steps.

So while non-Christian Kathy Griffin can tell Jesus to suck it as a publicity stunt, those of us who name him as our Savior can tell him to suck it by flouting his teachings for our own pursuits, and that’s something that truly offends him. And our audience takes much more to heart what they see in our lives rather than what they hear from a stranger on TV.

I highly doubt she’d be gratified to know that her words inspired such edifying reflections in this Christian. :)

Updated to add:

I’ve thought further on the subject and also realized two other things. First, that her remarks were not “hate speech.” (See the wikipedia article on hate speech: http://en.wikipedia.org/wiki/Hate_speech)

Second, that boycotting the products of a person you’ve never before heard of has absolutely zero effect on her. How many of us had ever heard of Kathy Griffin before this? Now we all know who she is and that she won an Emmy, so her publicity stunt has worked 100% perfectly.

Updated again:

I did send it, and the only response I got was from an irate person who was sure I’d been writing about her and was mad that I’d sent it to the whole list “to embarrass her.” Guilty conscience much?

Blanket finished and waiting

I actually finished my “Afghan of the Sandman” blanket mid-December but was too caught up in events to remember to post it. It was begun for nobody in particular, then when we found we were pregnant it was dedicated to the baby Peanut, then we miscarried and it was rededicated to Jay-Jay. At that point I began working on it in earnest, hoping to finish it before he came home. This blanket was completed in a record five months. Now it is in my closet, packed away with all my hopes for him. Kind of funny that I just happened to make this blanket in a child’s size rather than a newborn size, because if Jay-Jay does end up joining our family, by that time he too will be child-sized.

blanketjayjay1.jpg

Click the picture to see detail

I accidentally used the worsted weight Caron Simply Soft on this blanket, but now that it’s done I love the weight. I was glad that I’d used a no-dye-lot yarn because at the last minute I had to go out and buy just one more skien to finish it. Because I’d used the wrong weight, all the measurements did not fit what the directions indicated, so I ended up just continuing it until it was about the length I wanted, then moving on to the border. It worked just fine.

blanketjayjay2.jpg

I love it. So many hopes and sorrows and tears and prayers are woven into every stitch. Holding this blanket, laying it across my lap, snuggling it against my face, they all raise such a complicated soup of emotions within my heart. As beautiful as it is now in its just-completed state, I pray that someday I will see it matted and worn from many trips through the washing machine and much love from a small boy.

Update: I’ve done this again in white, then embellished it with ribbon to make it more feminine.

A yard sign in the boonies

…doesn’t really reach that many people. Especially at the end of a dead-end. On a dirt road. At the bottom of a hill.

Plenty of cows will see it, but they don’t vote.

So here’s my e-sign. No, that’s not really my yard. But yes, that’s really my vote!

ronpaulsign.jpg

Updated to add: They now have magnetic bumper stickers — much more up my alley of effective advertising!